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Preventing Nephrogenic Systemic Fibrosis

Nephrogenic systemic fibrosis is a very new disease, first described in 2000, and as such, much research is still
required on the subject. It seems to affect only those with moderate to severe kidney disease, and has a strong link to gadolinium-based contrast dyes, though the link has not been confirmed as a cause and effect link yet. Treatment and prevention methods still need to be further investigated, but a number of different options have been tried that may be helpful.

Preventing Nephrogenic Systemic Fibrosis by Improving Your Renal Functioning

Since Nephrogenic Systemic Fibrosis appears to occur only in those with moderate to severe kidney disease, one way of helping to prevent it could be to work on improving your renal functioning. Kidney patients should begin dialysis as soon as possible, and any other measures that could help strengthen your renal system could also help to prevent nephrogenic systemic fibrosis.

Avoid Gadolinium-Based Contrast Dyes If You Have Kidney Disease

If you have kidney disease and need to undergo an MRI scan, then request that gadolinium-based contrast dyes are not used, as these have a strong link to the development of nephrogenic systemic fibrosis. Although it has not been confirmed whether this is a cause and effect link, the FDA has warned against the use of gadolinium-based contrast dyes for kidney patients.

Keep Informed About Nephrogenic Systemic Fibrosis

Since Nephrogenic Systemic Fibrosis is such a new disease, therearen’t a lot of verified studies at present on how to prevent it. But if you are concerned about this, it is important that you keep up to date on what researchers are learning about this disease. New information will become increasingly available as more studies are done into this area, and this will help you to learn more about how to prevent Nephrogenic Systemic Fibrosis.

Nephrogenic Systemic Fibrosis is a new disease that was first described in 2000; as such there is as yet no confirmed way to prevent it. But, you may be able to prevent Nephrogenic Systemic Fibrosis by improving your renal functioning and avoiding gadolinium-based contrast dyes if you already have kidney disease.

 

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PERSONAL INFORMATION
First Name: *
Last Name: *
Address:
City:
State:
Zipcode:
Phone: -- ext.
Work Phone: -- ext.
E-mail Address: *
CASE INFORMATION
Have you been diagnosed with NSF (Nephrogenic Systemic Fibrosis) or NFD (Nephrogenic Fibrosing Dermopathy)? Yes No
When and where was the diagnosis made?
When did your problems start?

Describe your symptoms and how they developed.
Did you have an MRI (Magnetic Resonance Imaging) or MRA (Magnetic Resonance Angiography) scan done before your symptoms began? Yes No
Where and when was the scan (or scans, if more than one) done?
Did you have kidney failure, kidney function deficiency, or other kidney problems at the time the scan (or scans) were done? Yes No
Describe the kidney problems you had.

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* Required Fields
PERSONAL INFORMATION
First Name: *
Last Name: *
Address:
City:
State:
Zipcode:
Phone: -- ext.
Work Phone: -- ext.
E-mail Address: *
CASE INFORMATION
Have you been diagnosed with NSF (Nephrogenic Systemic Fibrosis) or NFD (Nephrogenic Fibrosing Dermopathy)? Yes No
When and where was the diagnosis made?
When did your problems start?

Describe your symptoms and how they developed.
Did you have an MRI (Magnetic Resonance Imaging) or MRA (Magnetic Resonance Angiography) scan done before your symptoms began? Yes No
Where and when was the scan (or scans, if more than one) done?
Did you have kidney failure, kidney function deficiency, or other kidney problems at the time the scan (or scans) were done? Yes No
Describe the kidney problems you had.
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